Spoonie preparing for international travel

Pretty much every day I order $25plus worth of items from Amazon.   Some may think I’m trying to control the anxiety of chaotic travel with material goods, and guess what, bitches?  It’s working.


In between my Ambien sleeps


I am staying in a resort in Nusa Dua and there’s not much on the internet about that region for celiacs (it’s all beach resorts).  American Airlines has promised GF meals.  😬  For emergencies, I’m bringing Annie’s GF macaroni and Gushers in my checked bag, then loading up on hot food and snacks in LAX.  The resort wrote me an email and I hope there’s nothing lost in translation:

Following up your inquiry regarding your special Consent.  We are delighted to give you some information about it: have celiac disease so cannot eat any gluten (wheat or soy sauce) or eat food that has touched gluten.

Ms,Nil could you please give us more information when is your arrival date and departure date in this hotel.  Because we would like to order special item for you and for your husband while you stay in our resort.  And I will share information thetail  to our team at FB Service and FB Production,and our chef veryhappy to assist you regarding special food.  But while you stay in our hotel if you come direcly at our restaurant or order food in room dinning  please inform our team at FB service that you have gluten free


I also mapped out the CarreFour supermarket nearby.



In case of gluten

My mother is so excited about bringing only a carry-on.  That’s nice for you.  My medications and supplements in their original huge bottles (paranoid about customs) will be taking up my carry-on.



Subbing for heating pad on abdomen on plane


Besides being paranoid about Zika, I have more of a reaction than most to mosquitoes and get bitten often.  Only Cutter Skinsationals works on me, but I’m trying this as a less noxious alternative.  A friend is similarly bite-inclined and said she went to South America with a group of children and this is what they successfully used over DEET products.



The Lupron bloat has subsided but I’m no longer chicly malnourished. Those maxi dresses cling.


Now all my swimsuits are too big or too tight.  Treat yourself!







The healing is real


I don’t always mention providers on this blog with the exception of Dr. Garza for excision surgery.  I would encourage anyone in the central Texas area to travel to visit Austin Meridian Therapy:
After excision for endometriosis, interstitial cystitis was the main disease causing pain and deteriorating quality of life. I woke up every hour to urinate and felt urgency after 10 minutes. Driving and standing were painful after an hour. I switched all my pants to leggings, and even those could be too much pressure on my abdomen. My skin ached at the lightest touch. I completely understand people who are not suicidal AND consider death an an option to end pain. It’s a disease that makes you go a little nuts (clinical term).
Have I tried x? Yes, I have tried everything before bladder instillations. And some treatments DO help rebuild the bladder wall and alleviate symptoms, but nothing has made as immediate and large of a change as seeing Jon Dollar for treatment.
A dear friend referred me and summed him up: he’s a true healer. What does he do? I can’t really describe it! He does acupuncture and energy work and focuses on balance and gut health. I’ve tried all those things before, over long periods of time, but they didn’t work as well as this.
I spent so much money and time on trying to achieve the results Jon gave me in one session. I originally saw him for fertility and when I mentioned bladder issues, he worked on that in a few minutes (third data point of acupuncture). He said I would flare and then return to a healthy baseline. For life. No weekly appointments or 3 different herbs to take 12x/day.
I am gluten-free due to Celiac, but no longer follow an inflammation diet because I track my symptoms daily and saw little difference. I am no longer on Elmiron because it costs $1100 monthly. I now wake once at night to urinate. I went to a birth and urinated twice in the first 9 hours. !!!! I don’t constantly think about the location of the nearest bathroom. I had 3 margaritas in a day without suffering! To me, this result is nothing short of a miracle. I’ve been waiting to return to chronic pain but nope! I feel human. If you have tried everything, book an appointment with Jon Dollar. You only need to go a few times and the cost is minimal.